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Marijke van den Berg and Kathelijn Fischer. Boggio and Mindy L.
Valentino and Guy Young. Valentino and Narine Hakobyan. Similarly, an early involvement of PWH representatives in the discussion of any clinical or organisational guidelines, as well of any associated health care programme, should be systematically pursued in line with the fourth principle of the European Principles of Haemophilia Care Conflict of interest disclosure. Lorenzo Mantovani declares the following conflict of interest: Advisory boards for Pfizer; consulting fees from Bayer not in the field of haemophilia , Research Grants from Grifols and Pfizer.
The other Authors declare no conflicts of interest. National Center for Biotechnology Information , U. Journal List Blood Transfus v. Romano Arcieri , 1 Angelo C. This article has been cited by other articles in PMC.
Footnotes Conflict of interest disclosure Lorenzo Mantovani declares the following conflict of interest: Haemophilia A and B. Mortality and causes of death in Italian persons with haemophilia, — Prophylaxis in people with haemophilia. Prophylaxis in haemophilia should be life-long. Costs of on-demand and prophylactic treatment for severe haemophilia in Norway and Sweden. World Federation of Hemophilia goals and achievements.
Plasma and plasma-derived medicinal products self-sufficiency: Models for institutional and professional accreditation of haemophilia centres in Italy. European principles of haemophilia care.
As haemophilia is a life-long condition, continuing supervision by a group of medical personnel is required. In many countries this is provided. Current and Future Issues in Hemophilia Care. Emérito Carlos Rodríguez- Merchán (Editor), Leonard A. Valentino (Editor). ISBN: Jul
Guidelines for the management of hemophilia. Franchini M, Mannucci PM.
Prophylaxis for adults with haemophilia: Past, present and future of hemophilia: Orphanet J Rare Dis. Randomized, controlled, parallel-group trial of routine prophylaxis vs.
Awaiting evidence-based recommendations on prophylaxis in adult patients. Petrini P, Identifying and overcoming barriers to prophylaxis in the management of haemophilia, Haemophilia, ;13 Suppl.
World Federation of Hemophilia, Guidelines for the management of hemophilia, Information System HemIS registry, annual report, unpublished. An European survey of practice and outcome data, Haemophilia, ; Goudemand J, Treatment of patients with inhibitors: Goudemand J, Inhibitor development in haemophilia A: